Where to find children's stories with tube fed characters that my child can relate to?
Having an unwell child in hospital, or having to undergo various tests, treatments or even an operation can be one of the most stressful things for a family to experience.
This can be a confusing and stressful time for the child and their siblings if they have any.
We spent a lot of time in hospital with my little girl. Her brother, 2 years older, was very confused, upset and anxious about the whole situation. One day he even said "Why did you choose this sick baby from the supermarket mummy? I don't see you as much now!".
Bless him! he had all the attention then BANG new baby that was not well and now mummy in hospital all the time.
Hearing him say that was so heart breaking and since then we used social stories with him to explain his sisters condition, what to expect, why mummy spends so much time in hospital etc.
Our social stories focused on subjects we were experiencing. This was a great fun, visual and interactive tool to use with our son to help him understand and cope with everything that was going on.
Social stories included "Mummy loves you too, you have not been replaced", "The boy who had a poorly sister", "Billy Bears Button" and more.
Below are a list of links for social stories we came across on the "Living with tube feeding, Scope Charity and Nutricia Homeward websites that you might find useful for your child and their siblings.
They are also a perfect way to share with your child's nursery or school to explain it to the other children in class and create awareness about feeding tubes.
You can download them, print them off and use as little story books.
1. Billy Bear's Button (A story about gastrostomy button feeding - by Nutricia).
Story link: http://bit.ly/tubiekids1
2. Cameron Camel's Pump (A story about pump feeding - by Nutricia)
Story link: http://bit.ly/tubiekids2
3. Ruby Rabbit’s NG Tube (A story about nasogastric tube feeding - by Nutricia)
Story link: http://bit.ly/tubiekids3
4. Fun in the Sun (A story that shows that tube feeding does not stop children from having fun written by Jackie Logue - Scope Charity)
Story link: http://bit.ly/tubiekids5
5. Ben Bear And His Other Belly Button (A story about gastrostomy feeding button - By Nutricia)
Story Link: http://bit.ly/tubiekids6
6. Rita Rabbit And Her Nose Tube (A story about nasogastric tube feeding - by Nutricia)
Story Link: http://bit.ly/tubiekids7
7. Timmy Tiger And His Tummy Tube (A story about gastrostomy button feeding - by Nutricia).
Story Link: http://bit.ly/tubiekids8
8. Get Well Soon ( A song about NG Feeding Tubes sung by Dr. Ranj, CBeebies, BBC)
Song link: https://bbc.in/2HRz4lk
9. Shai's Smile Charity have recently launched their first story book "Stars can not shine with out darkness". The book costs £6.99 and you can order it by emailing firstname.lastname@example.org. All profits go back into the charity.
We hope you enjoy reading them as much as we have!
*Zayne is a special needs mum and has 9 years of tube feeding hands on experience. She has designed and manufactured high quality and inspirational adaptive clothing for tube fed children in mind, inspired by her own daughter. She is a huge advocate for raising tube feeding awareness and providing "new tubie parents" with as much resources they need to help them start their tube feeding journey with ease.