In 2010 we were blessed with a beautiful and very special baby girl who was born with very complex respiratory and gastro medical issues making her number 7 in the world with her rare genetic condition called "Duplication 22q12q13".
Little did we know that the tiniest things we would normally take for granted in life such as eating orally and swallowing saliva was actually life threatening for her.
After spending months on end at Great Ormand Street Hospital and undergoing treatments and investigations, a year on, we proudly started a new journey and became tubie parents.
Finding fashionable tube feeding friendly clothing was proving to be pretty difficult. At feeding times, we would have to fully undress her to get to her MIC-KEY feeding button.
Our solution at the time was to cut holes in her clothing to access her feeding button or thread the feeding tube through bodysuit popper openings. This worked for a while until she started to outgrow the traditional baby onesies available in the high street shops.
The clothing situation as a whole was not ideal especially when "out and about" in cold weather with respiratory issues. Let alone from a dignity point of view!
Children become fashion conscious and like to look and be the same as other children. Colours and style is a way of saying who you are without having to speak.
Our daughter has a bubbly and cheeky personality and we wanted feeding tube friendly clothing that reflected her personality.
She inspired us and in April 2018, Tubie Kids® came to life!
Our fashion line is fresh, vibrant, full of colours and nice designs which the market lacked.
The adaptations in our designs are so discreet you would not even tell the difference. This allows tubie kids to be kids in their own right and express their own personalities through colours and designs without having to compromise comfort or functionality of the garments.
Tubie Kids® is a proud supporter of Great Ormand Street Hospital Charity.
GOSH continue to provide our little girl with state of the art care and treatment and we will forever be grateful.> See our collections